Fundraising Event for Epilepsy & SUDEP Awareness Honoring Heather Lindsey’s Memory

Fundraising Event for Epilepsy & SUDEP Awareness Honoring Heather Lindsey’s Memory

Healing Thru Music

About the Lindsey family’s experience with epilepsy:

As parents, we always anticipate the worst when raising our kids but never expect it to become a reality.

Born on October 13, 1985 at 1:51 pm in Milford Hospital – Heather Elizabeth was our first precious gift of life. Her very early years were filled with joy, love, and good health. She and her now estranged brother Jonathan Mark, born approximately 6 years later – were the absolutely love and pride of our life.

Fast forward to an evening 14 years later. My wife Elizabeth and I heard thudding noises coming from Heather’s bedroom located above our kitchen. We went up to check and found our daughter in the midst of a grand mall seizure lying on the floor by her bed. After calling 911, the remainder of that long night in two different hospitals remains a blur.

Heather was ultimately diagnosed with “idiopathic” epilepsy. In other words, a seizure disorder with undetermined causes. From that point forward, Heather experienced several breakthrough seizures until the proper dose of medication was applied. She would need to take that medication for the remainder of her life to avoid subsequent breakthrough events. Although mostly seizure free, the medication definitely affected her once very vibrant and outgoing personality. Nevertheless, she did very well in school, played sports, graduated college, married and became a mother to our beautiful granddaughter Olivia on August 26, 2014.

Following a recent case of Covid 19 her new husband returned to work for the first time in two weeks on October 26, 2021. Heather typically worked from home. Olivia had been staying with her Dad and stepmom during their illness. We were used to speaking or texting with Heather daily. My wife texted her a few times that morning. We called her and connected on the way to our gym. Heather mentioned she had a very bad headache -probably sinus – and then we lost cell signal – and could not reconnect. Not suspecting anything we continued on with the day. We never imagined that would be the last time we would ever speak with her.

After several follow up texts with no response, we decided to check in on her. The rest is too terrible to even fully describe. While waiting for 911 we had to perform CPR on our own little girl as she laid there lifeless. We had lost our daughter forever and Olivia had lost her mom to SUDEP (sudden unexplained death in epilepsy). We hope this event will help bring awareness to those who are suffering with or have a family member with epilepsy. Our goal is to support research to solve the mysteries associated with this condition and prevent this type of family tragedy.

Today, there is a very beautiful and vibrant 9-year-old Milford resident still asking that answerless question – why is my mommy gone? Her first words when notified – following the shrill primal scream were – “I really needed her.” Together, join us and let’s unite to prevent families from experiencing the heartache of losing a loved one to epilepsy.

About the Bands

Gunn Street Revival

In the mid-80’s…Mark, Pat and a tight group of friends rented out a barn on Gunn Street in Milford, CT. Together, a ton of great jamming, writing, and recording took place. Some say it was epic! It was probably Pat or Mark that said it! 😉

Over the next many years, Mark and Pat went in many musical directions. In 2017, the two got together and it sounded and felt better than ever. In 2021, great friends and musician rhythm section extraordinaries Dick Furanna and Mike Krajewski joined in the fun!

We are excited to welcome our special guests who have agreed to stop by and sit in on a few songs to help honor our daughter!

Ralph Marcario

Ralph Marcario is a multi-talented  musician who has played  with many local bands including Penny Lane, Yesterday Today and Jam Chowder.

 

 

 

Jay Rowe

Community musical leader Jay Rowe is an accomplished jazz musician with several solo CDs to his credit including “Smooth Ride” which you can catch on Sirius XM Watercolors channel. Jay also coordinates and performs in the annual event Smooth Jazz for Scholars and has recently toured nationally and internationally with English smooth jazz band Acoustic Alchemy.

Gunn Street Revival

In the mid-80’s…Mark, Pat and a tight group of friends rented out a barn on Gunn Street in Milford, CT. Together, a ton of great jamming, writing, and recording took place. Some say it was epic! It was probably Pat or Mark that said it! 😉

Over the next many years, Mark and Pat went in many musical directions. In 2017, the two got together and it sounded and felt better than ever. In 2021, great friends and musician rhythm section extraordinaries Dick Furanna and Mike Krajewski joined in the fun!

Ralph Marcario

We are excited to welcome special guest Ralph Marcario to the Healing Thru Music family on April 28th.

Ralph is a multi-talented  musician who has played  with many local bands including Penny Lane, Yesterday Today and Jam Chowder.

RumRunners

The RumRunners have become one of Connecticuts most popular cover bands where the party never ends. you will dance the night away and maybe even come up and sing a song with the band!

The band was formed by 4 firefighters from New Haven and Milford and the son-in-law and daughter of a retired New Haven firefighter. From the beginning it was decided that we would do what we loved to do and do it for a good cause – whatever that cause may be. Over the years we’ve helped to raise money for dozens of charities including The American Lung Association, The Connecticut Burn Camp, The Sunshine Kids Camp, Cystic Fibrosis, Breast Cancer Awareness and the Make-A-Wish Foundation, to name just a few. We’ve helped to save the Milford Diner and the New Haven St. Patrick’s Day Parade. We’ve helped to raise money for local school organizations, music programs, cheerleading teams, local youth sports organizations and sponsored a nursing scholarship in the name of a very dear friend. We are most honored to have always been there to support our friends and community by helping to raise money for countless individuals and their families during their time of need. Although the line-up of players has seen a few changes over the years, we have stayed true to our love of good music and our goal to always lend a hand to a worthy cause.

RumRunners

The RumRunners have become one of Connecticuts most popular cover bands where the party never ends. you will dance the night away and maybe even come up and sing a song with the band!

The band was formed by 4 firefighters from New Haven and Milford and the son-in-law and daughter of a retired New Haven firefighter. From the beginning it was decided that we would do what we loved to do and do it for a good cause – whatever that cause may be. Over the years we’ve helped to raise money for dozens of charities including The American Lung Association, The Connecticut Burn Camp, The Sunshine Kids Camp, Cystic Fibrosis, Breast Cancer Awareness and the Make-A-Wish Foundation, to name just a few. We’ve helped to save the Milford Diner and the New Haven St. Patrick’s Day Parade. We’ve helped to raise money for local school organizations, music programs, cheerleading teams, local youth sports organizations and sponsored a nursing scholarship in the name of a very dear friend. We are most honored to have always been there to support our friends and community by helping to raise money for countless individuals and their families during their time of need. Although the line-up of players has seen a few changes over the years, we have stayed true to our love of good music and our goal to always lend a hand to a worthy cause.

Event Information

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